Wednesday, September 18, 2013

My Gluten Soapbox


I have seen so many articles, cartoons and Facebook posts lately making fun of people on a gluten free diet.  I feel I owe it to my daughter to clarify a few things. 

Yes, eating gluten free seems to be a bit of a fad these days, and, honestly, I have to wonder if people who are “trying” to eat gluten free have any idea what they’re talking about.  It is a life-altering commitment to live a gluten free lifestyle.  Yes, I said lifestyle, not diet.  When Addison was diagnosed with celiac we had to change not only the foods she ate, but our shampoos, make-up, lotions.  She can no longer play with regular playdough or certain paints.  Anytime there is a craft activity involving pasta, cereal or any other foods- guess what?  Addison is at risk for being sick for a week. 

Learning a list of literally hundreds of ingredients to avoid, scrutinizing food labels, paying 3 times as much for gluten-free alternatives, making alternate arrangements for every birthday party, restaurant outing or holiday event is not something many people would choose to do.  We have a separate toaster, separate cookie sheets and dish brushes.  We have a constant awareness to not contaminate her foods by sticking our hands in the chip bag or by touching her food with gluten on our hands.  I’m sure Addison would love nothing more than to down a box of goldfish and a real chocolate cupcake. (Don’t get me wrong- I am happy to do it to keep my daughter healthy, but it is not something I would do for fun.)

Celiac is a genetic autoimmune disorder that affects about 3% of the population.  For these people, gluten is a poison to their systems.  When exposed, their intestines lose the ability to absorb properly, which puts the person at risk for anemia, malnutrition, intestinal cancers among a laundry list of other health problems.  I don’t see anyone making fun of diabetics on a low-carb, low-sugar diet or hypertensives on a low-sodium diet.

Gluten is found in wheat, barley, rye and contaminated oats.  For those without celiac or gluten intolerance, it is not harmful.  In fact, most of the breads and cereals that first come to mind are enriched with vitamins to promote health even beyond the benefit of the whole grains and fiber inherent in the foods themselves.  That’s right, those of you using your noggins are realizing that means that a gluten free diet also requires some effort to make sure that person is getting enough fiber and grains elsewhere in their diet.

As I mentioned before, please don’t think I’m complaining.  I am grateful that there is a relatively simple solution to the life-threatening condition we would otherwise have on our hands.  But the next time you choose to make fun of someone, do it about something they can control.

Sunday, September 15, 2013

First Day of School & Other Sundries [I'm a little late. What's new?]


Well, the kids have all started school & are settling in well.  Addison has a few weeks of kindergarten under her belt.  We’ve had a few little logistical kinks to work out in the beginning, but I think we’re pretty good now.  Her school has never had a student with Down Syndrome before, so this is a learning experience for all of us.  We’ve always known that school was going to be a lot of work for her and us, but the reality of that is starting to sink in.  It’s going to be a lot of work.  But I think she’s going to shock them at how much she can learn and do!

Austin & Kate are enjoying preschool.  Well, Austin is.  Kate is getting used to it.  She didn’t cry the first few days, but now she does.  I think it was all new and exciting in the beginning and now she’s thinking, “Whoa!  I know what’s about to happen now.” I think she has fun once she gets over the separation.  


The kids have been a lot of fun lately.  Kate is really starting to develop a cute little personality.  The other day she wanted me to help her put on this dress.  I turned around a few minutes later and saw this:


I started trying to get a picture, and all the kids wanted in on the action.  They were cracking me up posing and lining up all by their own doing.  I’d like to see this kind of participation at our next family photo shoot!  It has been really fun to watch them all play together and become better friends.



We've had a lot of fun around our house celebrating birthdays the last week or so.  My sweet mom threw a little party for me here in Allen, and Austin's celebrations are dragging out over about a week.  More on that next time.